Barth Syndrome is a rare, genetic, life-threatening disorder that affects males. We are only aware of approximately 120 cases WORLDWIDE! There will be a 6th Charity Golf Tournament held on Sunday, October 11, 2009. I was proud to sponsor the Barth Syndrome Foundation! If you would like to make a donation of any kind (gift certificates or cash donations)OR if you would like more information, Please contact myself or Jan Kugelmann (Mother of a child who continues to struggle with Barth Syndrome). Jkugelmann@cfl.rr.com
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